Baby J had his follow-up pulmonolgist appointment last Thursday and he is finally off of everything nebulizer!!! Yippee!!! We did get yelled at for using the blow-by treatments instead of the mask because the pulmonologist said it should be illegal for respiratory therapist to suggest blow-by treatments becuase the kids get less than 10% of the medicine when it is disbursed this way. But I feel like if the kid won't let us put the mask on his face 10% is better than no percent!!! Baby J is now on MDI treatments. Which is basically an inhaler with a face mask attached - so instead of a 20 minute nebulizer treatment 5 times a day he is getting 2 - 20 second sprays through the inhaler. I guess he was too little at 6 months to try this on him so now that he is older we can use the MDI. Baby J is finally looking and feeling really good which is huge.
N4 and X6 had their first soccer game on Saturday. N4 has really improved his attitude during soccer because we told him if he acted up he was off the team. I guess that really worked because up until the day of the game he thought he was kicked off the team. Of course our club does not keep score at this leve, but you better believe the kids were keeping score in their heads and 3 out of the 4 quarters we got creamed. We have to coach to games simultaneously so DH is on one field and I am on another and in the 3rd quarter I created my dream team with our players and we won that quarter 4 to 0. I was happy to see that it is not the coaches, but the players that make the game. My DH is forming a game plan for our next practice so our kids will at least know which way to go during the game.
N4 and X6 permanency hearing is next month and it totally snuck up on us because I guess we did not put it in the calander so the CASA worker said that this is a really big deal because the judge is going to determine which direction this case should go. I was hoping the kids would be able to go back home by May, but this doesn't seem to be the case. Looks like the dad still has a lot of work to do before they can go home. I guess it's just more of the same wait and see.
Monday, April 20, 2009
Tuesday, April 14, 2009
Happy Easter
Baby J's BM did not make her visit on the 3/28 so her first visit to see Baby J was April 3rd, so it had been 6 weeks since she saw him. My DH was surprised when he walked into the visit and BM's brother and wife and 3 kids were there for the visit. Not thinking and being totally caught off gaurd the brother asked for our e-mail address and my husbands phone # to keep in touch and not thinking my DH gave it to him. Luckily the e-mail address he gave them was wrong by mistake of course. DH said they seemed like really nice people and they were from out of town visiting for the Holiday weekend. Seems like BM lies to her family because they had no clue that we had Baby J since he was born and they didn't know anything about him being soo sickly.
I guess a fear would be that they want to take him, but the CW said they have no rights to Baby J whatsoever, so that would not happen. Of course we don't know if BM will ever get him back, but if she doesn't we want to be the first in line to adopt him and I know that doesn't always work out that way as I can tell from many of your stories.
N4 has been pretty low key lately. Not too much drama - a few episodes here and there. Like the screaming match we had this morning. He likes to yell at me when my DH is not around. If my DH was around it would never happen. How do they know these things! So I have to get my stern strict voice on and get him to submit because sweet, loving mom is not cutting it on those days.
I might have said this, but we signed N4 and X6 up for soccer and they had their first practice on Saturday. My DH is the Head Coach and I am the Assistant Coach. Practice did not go well. Now I know why 4 year olds are not allowed on the team. We are allowed to have N4 on the team if we are the coaches, but the whole time N4 didn't want to do anything everyone else was doing and he kept saying he wanted to go play on the swings. Fun times!!! My DH wants him off the team, but I think we are going to give him one more try and let him know exactly what is expected of him. X6 did pretty well. Got a little tired, but that's a good thing.
We had a great Easter other than getting called out of church to take Baby J to the hospital. He was throwing up yellow stuff and he kept doing it and crying so we took him to the emergency room. Found out he was throwing up phlegm because he had so much of it because of all of the congestion. We finally got squeezed into the pulmonologist this coming Thursday morning after waiting 2 weeks since his last episode. I'm not sure if I'm really happy about it or not because no one has been able to help him thus far. I am just going to pray that there is some kind of break through for this poor baby. Here we had taken him off of 4 medications because they weren't working and after he got out of the hospital they put him on 2 more. Will it never end! This kid is a walking pharmacy.
The weather is starting to get nicer and it has been soo nice to put the kids outside to play in the yard. They love it and I love it. This winter has been hard on all of us. I'm so glad to have Spring here. Can't wait for summer and BBQ's. Although it is tuff to put the kids to bed at 7-7:30 when it is still daylight outside!!! I guess I will have to invest in some room darkening blinds or some denim curtains. Any other suggestions besides letting the kids stay up. We find that putting them to bed at the latest 7:30pm gives my husband and I some sanity and alone time which really helps the marriage. Also, they just get into bed at 7:30pm and listen to a Patch the Pirate CD (a story with music) to fall asleep too. Works wonders.
I guess a fear would be that they want to take him, but the CW said they have no rights to Baby J whatsoever, so that would not happen. Of course we don't know if BM will ever get him back, but if she doesn't we want to be the first in line to adopt him and I know that doesn't always work out that way as I can tell from many of your stories.
N4 has been pretty low key lately. Not too much drama - a few episodes here and there. Like the screaming match we had this morning. He likes to yell at me when my DH is not around. If my DH was around it would never happen. How do they know these things! So I have to get my stern strict voice on and get him to submit because sweet, loving mom is not cutting it on those days.
I might have said this, but we signed N4 and X6 up for soccer and they had their first practice on Saturday. My DH is the Head Coach and I am the Assistant Coach. Practice did not go well. Now I know why 4 year olds are not allowed on the team. We are allowed to have N4 on the team if we are the coaches, but the whole time N4 didn't want to do anything everyone else was doing and he kept saying he wanted to go play on the swings. Fun times!!! My DH wants him off the team, but I think we are going to give him one more try and let him know exactly what is expected of him. X6 did pretty well. Got a little tired, but that's a good thing.
We had a great Easter other than getting called out of church to take Baby J to the hospital. He was throwing up yellow stuff and he kept doing it and crying so we took him to the emergency room. Found out he was throwing up phlegm because he had so much of it because of all of the congestion. We finally got squeezed into the pulmonologist this coming Thursday morning after waiting 2 weeks since his last episode. I'm not sure if I'm really happy about it or not because no one has been able to help him thus far. I am just going to pray that there is some kind of break through for this poor baby. Here we had taken him off of 4 medications because they weren't working and after he got out of the hospital they put him on 2 more. Will it never end! This kid is a walking pharmacy.
The weather is starting to get nicer and it has been soo nice to put the kids outside to play in the yard. They love it and I love it. This winter has been hard on all of us. I'm so glad to have Spring here. Can't wait for summer and BBQ's. Although it is tuff to put the kids to bed at 7-7:30 when it is still daylight outside!!! I guess I will have to invest in some room darkening blinds or some denim curtains. Any other suggestions besides letting the kids stay up. We find that putting them to bed at the latest 7:30pm gives my husband and I some sanity and alone time which really helps the marriage. Also, they just get into bed at 7:30pm and listen to a Patch the Pirate CD (a story with music) to fall asleep too. Works wonders.
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